ALS Center of Excellence

Pranger ALS Clinic

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Latest News

ALS Risk Higher Among Production Workers

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“Research Into Preventing ALS…”

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portrait of Dr. Eva Feldman in her lab

Dr. Feldman Given Highest University of Michigan Honor

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Multidisciplinary Team Publishes Paper on ALS Occupational Risk

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The ANA Q&A: Dr. Eva Feldman on ALS

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Living with ALS

A Guide for Patients and Families

This guide was created to provide important information for patients who have been diagnosed with amyotrophic lateral sclerosis (ALS), their families and loved ones. Its contents offer an overview of important aspects of living with ALS, including finding support, financial options, and leaving a legacy. We encourage you to keep this information on hand, and refer back to it as needed. If you have any questions or concerns, or would like additional information, please contact a clinic staff member.


Living with ALS Guide (PDF)

Disclaimer: This document contains information and/or instructional materials developed by the University of Michigan Health System (UMHS) for the typical patient with your condition. It may include links to online content that was not created by UMHS and for which UMHS does not assume responsibility. It does not replace medical advice from your health care provider because your experience may differ from that of the typical patient. Talk to your health care provider if you have any questions about this document, your condition or your treatment plan.

Authors: Heather Burcham, B.A. & Jack Harrington, LMSW with Patient and Family Advisors

Reviewers: Jack Harrington, LMSW, Nancy Egerer, Nurse Practitioner Certified, Stephen Goutman, M.D. & Eva Feldman, M.D., Ph.D.

Patient Education by University of Michigan Health System is licensed under a Creative Commons Attribution- NonCommercial-ShareAlike 3.0 Unported License. Last Revised 08/2015

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ALS Center of Excellence at Michigan Medicine ALS Infographic

ALS Brochure

ALS Brochure

 

 

 

 

 

Resources

Organizations

  • ALS Association
  • ALSA-Michigan Chapter
  • Ann Arbor Active Against ALS
  • ALSA-Northern Ohio Chapter
  • ALS of Michigan
  • National ALS Registry
  • Northeast ALS Consortium
  • Muscular Dystrophy Association

Services

  • Veterans Benefits
  • Social Security Benefits

Useful Links

  • U-M Stem Cell Research
  • Center for Stem Cell Biology
  • Human Embryonic Stem Cell Research
  • Society for Stem Cell Research

RSS Research News

  • U-M to establish new Institute for Firearm Injury Prevention
  • U-M Depression Center to be named for Eisenberg family, in recognition of $30M in giving
  • Research on aging expands at U-M with $15M in new grants

Contact Information

Michigan Medicine
1500 E. Medical Center Drive
Ann Arbor, MI 48109
Phone: 734-936-4000
Contact Michigan Medicine

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  • About UMHS
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  • Home
  • About
    ▼
    • What Is ALS?
    • Scott L. Pranger
    • National Advisory Board
    • Faculty & Staff
    • ALS Center of Excellence Brochure
  • Clinic
    ▼
    • Services
    • Your Visit to the ALS Clinic
    • Patient Portal
    • Durable Medical Equipment
    • Frequently Asked Questions
  • Research
    ▼
    • Clinical Trials
    • Observational Studies
    • Participate in Research at U-M
  • News
  • Patient Care Guide
    ▼
    • Living with ALS
    • Nutrition
    • Patient & Family Support
  • Contact
  • NeuroNetwork
  • Make A Gift