ALS Center of Excellence

Pranger ALS Clinic

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Latest News

ALS Risk Higher Among Production Workers

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“Research Into Preventing ALS…”

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portrait of Dr. Eva Feldman in her lab

Dr. Feldman Given Highest University of Michigan Honor

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Multidisciplinary Team Publishes Paper on ALS Occupational Risk

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The ANA Q&A: Dr. Eva Feldman on ALS

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Suggested Reading

BOOKS

  • Amyotrophic Lateral Sclerosis: A Guide for Patients and Families. By Hiroshi Mitsumoto MD
  • The Comfort of Home: A Complete Guide for Caregivers. By Maria M. Meyer
  • Living with the End in Mind; A Practical Checklist for Living Life to the Fullest by Embracing Your Mortality. By Erin Tierney Kramp
  • Reaching Back: A Workbook for Recording Your Life’s Most Meaningful Moments to Share with Future Generations. By Alice Chapin

AUDIO & APPS

  • Bruce Kramer: Living with ALS. http://www.mprnews.org/topic/living-with-als
  • Bruce Kramer’s Dis Ease Diary Blog.  https://diseasediary.wordpress.com/
  • Virtual Hope Box. Contains tools for coping, relaxation, distraction & positive thinking
  • Google Play: https://play.google.com/store/apps/details?id=com.t2.vhb
  • Itunes: https://itunes.apple.com/us/app/virtual-hope-box/id825099621?mt=8

FOR CHILDREN & FAMILIES

  • When Someone Has a Very Serious Illness: Children Can Learn to Cope with Loss and Change. By Marge Heegaard
  • ALS Activity Book: Helping Children Understand the Puzzle of Amyotrophic Lateral Sclerosis. By The ALS Association St. Louis Regional Chapter (available to download at no cost online) http://webstl.alsa.org/site/DocServer/ChildrensActivityBook.pdf?docID=72224
  • ALS is a Family Matter: A Communications Manual for Patients and Those Who Care for Them. By Joan Krash, Ph.D. ALS Association DC/MD/VA Regional Chapter (available to download at no cost online) http://webdc.alsa.org/site/DocServer/ALS_is_a_Family_Matter.pdf?docID=71906

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ALS Center of Excellence at Michigan Medicine ALS Infographic

ALS Brochure

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Resources

Organizations

  • ALS Association
  • ALSA-Michigan Chapter
  • Ann Arbor Active Against ALS
  • ALSA-Northern Ohio Chapter
  • ALS of Michigan
  • National ALS Registry
  • Northeast ALS Consortium
  • Muscular Dystrophy Association

Services

  • Veterans Benefits
  • Social Security Benefits

Useful Links

  • U-M Stem Cell Research
  • Center for Stem Cell Biology
  • Human Embryonic Stem Cell Research
  • Society for Stem Cell Research

RSS Research News

  • U-M to establish new Institute for Firearm Injury Prevention
  • U-M Depression Center to be named for Eisenberg family, in recognition of $30M in giving
  • Research on aging expands at U-M with $15M in new grants

Contact Information

Michigan Medicine
1500 E. Medical Center Drive
Ann Arbor, MI 48109
Phone: 734-936-4000
Contact Michigan Medicine

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  • About UMHS
  • For Patients
  • For Health Professionals
  • For Researchers
  • Home
  • About
    ▼
    • What Is ALS?
    • Scott L. Pranger
    • National Advisory Board
    • Faculty & Staff
    • ALS Center of Excellence Brochure
  • Clinic
    ▼
    • Services
    • Your Visit to the ALS Clinic
    • Patient Portal
    • Durable Medical Equipment
    • Frequently Asked Questions
  • Research
    ▼
    • Clinical Trials
    • Observational Studies
    • Participate in Research at U-M
  • News
  • Patient Care Guide
    ▼
    • Living with ALS
    • Nutrition
    • Patient & Family Support
  • Contact
  • NeuroNetwork
  • Make A Gift