BOOKS
- Amyotrophic Lateral Sclerosis: A Guide for Patients and Families. By Hiroshi Mitsumoto MD
- The Comfort of Home: A Complete Guide for Caregivers. By Maria M. Meyer
- Living with the End in Mind; A Practical Checklist for Living Life to the Fullest by Embracing Your Mortality. By Erin Tierney Kramp
- Reaching Back: A Workbook for Recording Your Life’s Most Meaningful Moments to Share with Future Generations. By Alice Chapin
AUDIO & APPS
- Bruce Kramer: Living with ALS. http://www.mprnews.org/topic/living-with-als
- Bruce Kramer’s Dis Ease Diary Blog. https://diseasediary.wordpress.com/
- Virtual Hope Box. Contains tools for coping, relaxation, distraction & positive thinking
- Google Play: https://play.google.com/store/apps/details?id=com.t2.vhb
- Itunes: https://itunes.apple.com/us/app/virtual-hope-box/id825099621?mt=8
FOR CHILDREN & FAMILIES
- When Someone Has a Very Serious Illness: Children Can Learn to Cope with Loss and Change. By Marge Heegaard
- ALS Activity Book: Helping Children Understand the Puzzle of Amyotrophic Lateral Sclerosis. By The ALS Association St. Louis Regional Chapter (available to download at no cost online) http://webstl.alsa.org/site/DocServer/ChildrensActivityBook.pdf?docID=72224
- ALS is a Family Matter: A Communications Manual for Patients and Those Who Care for Them. By Joan Krash, Ph.D. ALS Association DC/MD/VA Regional Chapter (available to download at no cost online) http://webdc.alsa.org/site/DocServer/ALS_is_a_Family_Matter.pdf?docID=71906
