ALS Center of Excellence

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Resources

University of Michigan ALS Clinic: https://www.umich-als.org/

Michigan ALS Research Consortium of Hospitals: http://www.march-against-als.org/  

National ALS Association: http://www.alsa.org

(800) 782-4747

ALSA – MI Chapter:           http://webmi.alsa.org

East Michigan – Troy: (248) 680-6540

West Michigan – Grand Rapids: (616) 459-1900

ALS of Michigan:                 http://www.alsofmi.org

Southfield: (800) 882-5764

Michigan Area Agencies on Aging: Provides information regarding available community resources for older adults (60+) and low income adults with disabilities (such as Medicaid Waiver Program). Available to provide information regarding Medicaid and Medicare health care benefits through the Medicare/Medicaid Assistance Program (MMAP). For further information contact your local AAA by phone and ask to speak with a resource specialist or visit their website.

Detroit Area Agency on Aging Service Area (Region 1a): Cities – Detroit, Hamtramck, Highland Park, Grosse Pointe, Grosse Pointe Park, Grosse Pointe Shores, Grosse Pointe Woods, Grosse Pointe Farms, Harper Woods

1333 Brewery Park Blvd. Suite 200

Detroit, MI 48207

(313) 446-4444

Area Agency on Aging 1-B Service Area (Region 1b): Counties – Livingston, Macomb, Monroe, Oakland, St. Clair, Washtenaw

29100 Northwestern Hwy.

Suite 400

Southfield, MI 48034

(248) 357-2255

The Senior Alliance, Inc. Service Area (Region 1c): Counties – Wayne County except the cities served by 1a

3850 Second Street

Suite 201

Wayne, MI 48184

(734) 722-2830

Region 2 Area Agency on Aging Service Area (Region 2): Counties – Jackson, Hillsdale, Lenawee

102 N. Main Street Brooklyn, MI 49230

(517) 592-1974

Region 3-A Agency on Aging Service Area (Region 3a): County – Kalamazoo

3299 Gull Road

P.O. Box 42 Nazareth, MI 49074 (269) 373-5147

Region 3-B Area Agency on Aging Service Area (Region 3b): Counties – Barry, Calhoun

200 West Michigan Avenue Suite 102

Battle Creek, MI 49017 (269) 966-2450

Branch – St. Joseph Area Agency on Aging Service Area (Region 3c): Counties – St. Joseph, Branch

570 Marshall Road

Coldwater, MI 49036

(517) 278-2538

Region IV Area Agency on Aging Service Area (Region 4): Counties – Berrien, Cass, Van Buren

2900 Lakeview Avenue St. Joseph, MI 49085 (269) 983-0177

Valley Area Agency on Aging Service Area (Region 5): Counties – Genesee, Lapeer, Shiawassee

225 E. Fifth Street Suite 200

Flint, MI 48502

(810) 239-7671

Tri-County Office on Aging Service Area (Region 6): Counties – Clinton, Eaton, Ingham

5303 South Cedar Street Lansing, MI 48911

(517) 887-1440

Region VII Area Agency on Aging Service Area (Region 7): Counties – Bay, Clare, Gladwin, Gratiot, Huron, Isabella, Midland, Saginaw, Sanilac, Tuscola

1615 S. Euclid Ave.

Bay City, MI 48706

(989) 893-4506

Area Agency on Aging of Western Michigan Service Area (Region 8): Counties – Allegan, Ionia, Kent, Lake, Mason, Mecosta, Montcalm, Newaygo, Osceola

3215 Eaglecrest Drive NE Grand Rapids, MI 49525 (616) 456-5664

Region IX Area Agency on Aging Service Area (Region 9): Counties – Alcona, Arenac, Alpena, Cheboygan, Crawford, Iosco, Montmorency, Ogemaw, Oscoda, Otsego, Presque Isle, Roscommon

2375 Gordon Road

Alpena, MI 49707

(989) 356-3474

Area Agency on Aging of Northwest Michigan Service Area (Region 10): Counties– Antrim, Benzie, Charlevoix, Emmet, Grand Traverse, Kalkaska, Leelanau, Manistee, Missaukee, Wexford

1609 Park Drive

P.O. Box 5946 Traverse City, MI 49686 (231) 947-8920

Social Security Administration:

http://www.socialsecurity.gov

(800) 772-1213

Office locator: https://secure.saa.gov/apps6z/FOLO/fo001.jsp

Michigan Department of Health and Human Services (MDHHS):

http://www.michigan.gov/dhs

Your local MDHHS office can be located by clicking on Inside DHS, then clicking County Offices.

Medicare Hospice Benefits

www.medicare.gov/Pubs/pdf/02154.pdf

Department of Veterans Affairs: http://www.va.gov/health/

It depends on your specific situation, but in general, military veterans diagnosed with ALS who have served at least 90 continuous days of active duty will be considered service connected for ALS. This is the case regardless of when or where a veteran served in the military and regardless of the length of time between discharge from the military and a diagnosis of ALS. We recommend that if you are a veteran with ALS that you apply for veterans benefits.

ALSA Resources for Military Veterans, Families & Survivors: http://www.alsa.org/als-care/veterans/

We recommend when applying for veterans benefits that you enlist the assistance of a service officer or county veterans counselor to assist in navigating the VA application process. Service officers are affiliated with a variety of veterans organizations such as Paralyzed Veterans of America (PVA), Disabled American Veterans (DAV), the American Legion, or Veterans of Foreign Wars (VFW). We can provide you with service officer contact information. For information on the State of MI Department of Military and Veterans Affairs including a list of Veterans Trust Fund and Veterans Counselor by county please refer to the following website:

http://www.michiganveterans.com/Home/Benefit-Counselors#CountyContacts

Disability Made Easy: A Michigan-based company committed to residential, barrier free construction

http://www.dmeasap.com

(248) 569-1580

Homemods.org: Serves as an information clearinghouse on home modification to equip professionals and consumers with a comprehensive inventory of resources such as a National Directory of Home Modification and Repair Resources

http://www.homemods.org

Michigan Assistive Technology Loan Fund:

http://ucpmichigan.ucplabs.org/media_items/matlf- brochure.original.pdf

Adaptive Clothing Manufacturers:

Buck & Buck Designs 3111 27th Avenue South Seattle, WA 98144

http://www.buckandbuck.com Clothing, footwear and accessories

Personal Touch Health Care Apparel

P.O. Box 230321 Brooklyn, New York 11223 (888) 626-0200

http://www.nursinghomeapparel.com

Good for limited mobility

Silvert’s

3280 Steels Avenue West Suite18

Concord Ontario L4K 2Y2 http://www.silverts.com

Variety of men’s and women’s clothing

Leading Lady Bras 24050 Commerce Park

Beachwood, Ohio 44122

(888) 321-4804

http://www.leadinglady.com

Adapted bras

Join the National ALS Registry. With your help, we can advance research. Learn More.

Resources

Organizations

  • ALS Association
  • ALSA-Michigan Chapter
  • Ann Arbor Active Against ALS
  • ALSA-Northern Ohio Chapter
  • ALS of Michigan
  • National ALS Registry
  • Northeast ALS Consortium
  • Muscular Dystrophy Association

Services

  • Veterans Benefits
  • Social Security Benefits

Newsletter Signup

Subscribe to our mailing list for updates regarding our Clinic and Research

Useful Links

  • U-M Stem Cell Research
  • Center for Stem Cell Biology
  • Human Embryonic Stem Cell Research
  • Society for Stem Cell Research

RSS Research News

  • $10M gift from Tadataka and Leslie Yamada will fuel U-M efforts to improve the world’s health
  • Grades are in: Gender equality report card reveals systematic underrepresentation of women in STEM
  • U-M team reaches final round in “March Madness” of science

Contact Information

Michigan Medicine
1500 E. Medical Center Drive
Ann Arbor, MI 48109
Phone: 734-936-4000
Contact Michigan Medicine

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  • About
    ▼
    • What Is ALS?
    • Faculty & Staff
    • National Advisory Board
  • Clinic
    ▼
    • Services
    • Your Visit to the ALS Clinic
    • Patient Portal
    • Durable Medical Equipment
    • Frequently Asked Questions
  • Research
    ▼
    • Clinical Trials
    • Observational Studies
    • Stem Cell Trial
    • Our Publications
    • Participate in Research at U-M
  • News
  • Patient Care Guide
    ▼
    • Nutrition
    • Living with ALS
    • Mobility & Independence
    • Patient & Family Support
  • Contact
  • Make A Gift