ALS Center of Excellence

Pranger ALS Clinic

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Policy Matters for Patients

YOUR VOICE

When you are diagnosed with ALS, getting involved in public policy initiatives may feel like a distant thought. For some time you and your family may be focused on survival, on understanding ALS and adjusting your lives to this new challenge you are being faced with. However, policy directly impacts your experience, and as a person diagnosed with ALS, caregiver or family member it is your voice that matters most in making change happen at the local, state and federal levels for yourself, and other families facing ALS.

POLICY WORKS

Policy initiatives focus on funding and supporting research to discover new treatments for ALS, removing barriers that may be slowing down the process of finding a cure, and ensuring patient access to important medical benefits, such as speech generating devices, in a timely manner.

Most importantly, speaking out about ALS can raise awareness and inspire lawmakers to take action to help patients with ALS and their families. Reaching out to lawmakers can provide an important opportunity to share your story, make a difference in your own life, and in the lives of those who will be affected by ALS in the future.

TAKE ACTION

There are many ways to fight ALS by taking policy action. The ALS Association is deeply involved in current policy initiatives, and provide a number of resources and ideas for getting involved, including their annual National Advocacy Day and Public Policy Conference in Washington D.C.

Just joining the ALSA advocacy mailing list or writing a letter to your elected official in Congress, telling your story and urging them to take action, makes a difference in joining current advocacy efforts. YOUR voice is needed to take action to fight ALS.

Visit www.alsa.org/advocacy to learn more about ways to get involved in policy initiatives.

ALS Brochure

ALS Brochure


COVID-19 Update

COVID-19 Resources

Join the National ALS Registry. With your help, we can advance research. Learn More.

Resources

Organizations

  • ALS Association
  • ALSA-Michigan Chapter
  • Ann Arbor Active Against ALS
  • ALSA-Northern Ohio Chapter
  • ALS of Michigan
  • National ALS Registry
  • Northeast ALS Consortium
  • Muscular Dystrophy Association

Services

  • Veterans Benefits
  • Social Security Benefits

Newsletter Signup

Subscribe to our mailing list for updates regarding our clinic and research

Useful Links

  • U-M Stem Cell Research
  • Center for Stem Cell Biology
  • Human Embryonic Stem Cell Research
  • Society for Stem Cell Research

RSS Research News

  • Research on aging expands at U-M with $15M in new grants
  • U-M to Conduct Clinical Trial to Test AstraZeneca COVID-19 Vaccine
  • Michigan Medicine and three other medical centers receive $7 million for COVID-19 outpatient convalescent plasma therapy trial

Contact Information

Michigan Medicine
1500 E. Medical Center Drive
Ann Arbor, MI 48109
Phone: 734-936-4000
Contact Michigan Medicine

Connect With Us

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  • About UMHS
  • For Patients
  • For Health Professionals
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  • Home
  • About
    ▼
    • What Is ALS?
    • Scott L. Pranger
    • National Advisory Board
    • Faculty & Staff
    • ALS Center of Excellence Brochure
  • Clinic
    ▼
    • Services
    • Your Visit to the ALS Clinic
    • Patient Portal
    • Durable Medical Equipment
    • Frequently Asked Questions
  • Research
    ▼
    • Clinical Trials
    • Observational Studies
    • Stem Cell Trial
    • Our Publications
    • Participate in Research at U-M
  • News
  • Patient Care Guide
    ▼
    • Nutrition
    • Living with ALS
    • Mobility & Independence
    • Patient & Family Support
  • Contact
  • NeuroNetwork
  • Make A Gift